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Fighting mito,
finding hope.

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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Personal stories Fundraising
23 March 2022

Release your inner fundraiser!

After losing their 18-month-old son, Aidan, to mito, Simon and Lucy dedicated themselves to supporting other mito families and fundraising to find a cure. Here the couple share their tips on how to make a difference, from running a marathon to nailing a corporate sponsorship pitch.

Research
7 March 2022

International Women's Day: Interview with Prof Gráinne Gorman

Professor Gráinne Gorman is a Consultant Neurologist, Director of the Wellcome Centre for Mitochondrial Research, and a member of The Lily Foundation Medical Board. To mark International Women's Day, we spoke to Gráinne about her role at WCMR, and the work she and her team are doing to raise awareness of mitochondrial disease and find curative therapies.