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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Personal stories
1 June 2022

Volunteers' Week 2022

Volunteers' Week ​​recognises the important contribution volunteers make to society, but the rewards make it worth every minute you spend helping out, writes one of Lily's longest-serving volunteers, Peter Bagatti.

Personal stories
11 May 2022

International Nurses Day 2022

International Nurses Day is observed around the world on 12 May (the anniversary of Florence Nightingale's birth) to honour the contribution that nurses make to society. To mark the occasion we hear from Chloe Poole, a Metabolic Clinical Nurse Specialist at Bristol Royal Hospital for Children.