Fighting mito,
finding hope.
World Mitochondrial Disease Week is here – let’s raise awareness together this September.
Mitochondrial disease, or ‘mito’, is a rare, complex and difficult-to-diagnose genetic disorder that affects people in very different ways. It can affect any organ at any age, and often occurs in babies and young children. There is currently no cure, but we’re working hard to change that, and are the largest charitable funder of mitochondrial research in Europe.
Mitochondrial dysfunction has been identified as a key factor in other more common diseases including dementia, Parkinson's disease, epilepsy and cancer. The research we fund and support not only holds promise for individuals with mitochondrial disorders, but has the potential to benefit millions of others too.
That’s why, despite being a little-known disease, mitochondrial disease could be the key to some of the most important medical breakthroughs of our time.
We want to show you just what it takes to live with mitochondrial disease.
Meet Harry, Mandy, Katie, Tom and Leia, all real people, living with mito every day. Leia and her family show incredible courage as they fight her incurable condition. Harry and his mum Mandy have hope and belief for the future. They all have what it takes – but they can’t do it alone.
With your support, The Lily Foundation can keep providing care for families like these, funding vital research and finding hope where it’s needed most. Do you have what it takes to help us fight mito? Donate today to make a difference.
Our guide will help you make sense of your condition. Find easy-to-understand explainers, science simplified and the reassurance that we’re with you every step of the way.
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since 2007
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When Gary’s young son Fionn was diagnosed with an ultra-rare form of mitochondrial disease, their world was turned upside down. But out of that darkness has come a determination to make a difference, and today Gary races a motorcycle carrying the Lily logo across Ireland, turning his family’s journey into a mission to raise awareness, fund research and put mito on the map.
With World Mitochondrial Disease Week (September 14th-20th) just around the corner, there’s never been a better time to help put mito on the map – and it’s not all about generating funds. Here are our top ten reasons to get spreading the word about rare mitochondrial diseases, not just during Awareness Week but every week.
The Lily Foundation are celebrating a major milestone in mitochondrial research, as a new multi-partner initiative secures funding to drive forward future treatments. As a named partner, we’re proud to be investing directly in five PhD studentships, helping to train the next generation of scientists while ensuring patient voices remain at the heart of groundbreaking research.
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