Fighting mito,
finding hope.
Donate through JustGiving to help The Lily Foundation fight mitochondrial disease and find hope for patients and their families.
Mitochondrial disease, or ‘mito’, is a rare, complex and difficult-to-diagnose genetic disorder that affects people in very different ways. It can affect any organ at any age, and often occurs in babies and young children. There is currently no cure, but we’re working hard to change that, and are the largest charitable funder of mitochondrial research in Europe.
Mitochondrial dysfunction has been identified as a key factor in other more common diseases including dementia, Parkinson's disease, epilepsy and cancer. The research we fund and support not only holds promise for individuals with mitochondrial disorders, but has the potential to benefit millions of others too.
That’s why, despite being a little-known disease, mitochondrial disease could be the key to some of the most important medical breakthroughs of our time.
We want to show you just what it takes to live with mitochondrial disease.
Meet Harry, Mandy, Katie, Tom and Leia, all real people, living with mito every day. Leia and her family show incredible courage as they fight her incurable condition. Harry and his mum Mandy have hope and belief for the future. They all have what it takes – but they can’t do it alone.
With your support, The Lily Foundation can keep providing care for families like these, funding vital research and finding hope where it’s needed most. Do you have what it takes to help us fight mito? Donate today to make a difference.
Our guide will help you make sense of your condition. Find easy-to-understand explainers, science simplified and the reassurance that we’re with you every step of the way.
Raised
since 2007
Families
supported
Donated
to patients
Research projects
funded
Supporters on the Isle of Wight came together in an inspiring show of community spirit last weekend. Thanks to a fun-filled day of football, sunshine and family entertainment, they raised vital funds and awareness for mitochondrial disease in honour of 3-year-old Teddy.
We’re proud to share the results of the first ever piece of Lily-led research – a study that looks in depth at how patients and families experience the moment of receiving a diagnosis of mitochondrial disease, and how that can have a long-lasting impact.
The 2026 London Marathon was a landmark moment for Lily, bringing together our biggest mass-participation team at a sporting event ever! An incredible 52 runners took on the challenge – including some travelling from as far afield as the US and Norway – together raising an astonishing £193,000 to fund vital mitochondrial disease research and support.
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