Fighting mito,
finding hope.
World Mitochondrial Disease Week is coming – let’s raise awareness together this September.
Mitochondrial disease, or ‘mito’, is a rare, complex and difficult-to-diagnose genetic disorder that affects people in very different ways. It can affect any organ at any age, and often occurs in babies and young children. There is currently no cure, but we’re working hard to change that, and are the largest charitable funder of mitochondrial research in Europe.
Mitochondrial dysfunction has been identified as a key factor in other more common diseases including dementia, Parkinson's disease, epilepsy and cancer. The research we fund and support not only holds promise for individuals with mitochondrial disorders, but has the potential to benefit millions of others too.
That’s why, despite being a little-known disease, mitochondrial disease could be the key to some of the most important medical breakthroughs of our time.
We want to show you just what it takes to live with mitochondrial disease.
Meet Harry, Mandy, Katie, Tom and Leia, all real people, living with mito every day. Leia and her family show incredible courage as they fight her incurable condition. Harry and his mum Mandy have hope and belief for the future. They all have what it takes – but they can’t do it alone.
With your support, The Lily Foundation can keep providing care for families like these, funding vital research and finding hope where it’s needed most. Do you have what it takes to help us fight mito? Donate today to make a difference.
Our guide will help you make sense of your condition. Find easy-to-understand explainers, science simplified and the reassurance that we’re with you every step of the way.
Raised
since 2007
Families
supported
Donated
to patients
Research projects
funded
With World Mitochondrial Disease Week (September 14th-20th) just around the corner, there’s never been a better time to help put mito on the map – and it’s not all about generating funds. Here are our top ten reasons to get spreading the word about rare mitochondrial diseases, not just during Awareness Week but every week.
The Lily Foundation are celebrating a major milestone in mitochondrial research, as a new multi-partner initiative secures funding to drive forward future treatments. As a named partner, we’re proud to be investing directly in five PhD studentships, helping to train the next generation of scientists while ensuring patient voices remain at the heart of groundbreaking research.
When Pooja and Terry lost their daughter Aria to mitochondrial disease, they channelled their grief into action. What began as a way to honour their little girl’s life has grown into an incredible fundraising team, and one year on from Aria’s passing, they’re raising vital funds, building support networks and helping other families affected by mitochondrial disease to feel less alone.
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