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finding hope.

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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Research Awareness
26 January 2023

Spreading the word on the Foundation’s work

Head of Research & Finance Alison and Science & Patient Engagement Officer Katie are delighted to be attending the British Paediatric Neurology Association’s 49th Annual Scientific Meeting at The Royal College of Physicians of Edinburgh from 25th-27th January 2023.

Research Awareness
25 January 2023

On the road with the research team

It was a busy end to 2022 for Alison Maguire (Head of Research & Finance) and Katie Waller (Science & Patient Engagement Officer), who have been proudly representing The Lily Foundation at a range of recent mitochondrial disease events aimed at medical professionals, scientists and researchers.

Research
15 December 2022

Celebrating 15 years of... Lily research

As we celebrate our 15th anniversary year, we can feel proud of what our charity has done to advance research into mitochondrial disease. We’re the largest charitable funder of mitochondrial disease in Europe, and this is a key element of our strategy.