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Fighting mito,
finding hope.

News

Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Personal stories
3 October 2017

Racing to beat mito

Congratulations to our daring duo Jon Milne and Sailor Swift, who have made a great start to their circumnavigation of the globe in aid of Lily Foundation. Jon and his teddy bear sidekick, who are sailing in the Clipper Round The World yacht race to raise awareness about mitochondrial disease, have already raised over £1000 on the first leg of their voyage.

Research
3 October 2017

Lily Research News

Supporting medical research into mitochondrial disease is a key part of our work at The Lily Foundation. It's consistent with our long-term goal of finding a cure for mito, and also brings life-changing benefits to people who are living with the disease today. Here we look at a promising study that’s currently underway at University College London.

Personal stories
25 July 2017

Charlie Gard

Our thoughts and prayers are with Chris Gard, Connie Yates and of course their son Charlie Gard today, as they have been for the last eight months.

Research Awareness
17 July 2017

Highlights of Euromit 2017

We’re excited to share some recent updates on the diagnosis and potential treatments of mitochondrial disease which were discussed at the Patient Meeting of Euromit 2017 in Cologne, Germany, recently.

Research
4 May 2017

Dystonia Awareness Week

A research paper published last year investigated which movement disorders are seen in patients with mitochondrial disease and whether these could be linked to the underlying genetic error. Find out more.