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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Research
18 May 2018

Unlocking NR

Nicotinamide Riboside (NR) is a form of vitamin B3 hyped for its alleged anti-ageing properties, but research shows it could be a treatment for mitochondrial disease. The Lily Foundation has recruited Dr Alex Clout, of UCL's School of Pharmacy and Institute of Neurology, to develop a formulation for patient trials.

Awareness Fundraising
10 April 2018

Peter Kay charity screenings raise over £34,000 to fight mitochondrial disease

The Lily Foundation is delighted to share news that Peter Kay’s charity screenings of Car Share have raised more than £34,000 to help fight mitochondrial disease. That money will be invaluable in helping us fund research into treatments and support patients and their families affected by the condition.