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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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All Articles Support Research Events Personal stories Awareness Fundraising Fitness

a man in a grey suit walks next to a women in a white wedding dress and veil holding flowers. Both are smiling

Personal stories
11 February 2019

A Lily love story

Let the Valentine's Day vibes wash over you with this moving video of Sophie and Jamie's wedding.

a gloved hand holds a vile in front of a laboratory machine

Research
4 February 2019

Enzyme replacement therapy for MNGIE patients approved for clinical trials in UK

The Lily Foundation is proud to announce that a project part-funded by the charity to develop a therapy for MNGIE syndrome has been approved for clinical trials in the UK, and could become the first effective treatment for this form of mitochondrial disease.

Two members of the Lily Foundation team stand infront of a BPNA sign

Awareness
1 February 2019

The Lily Foundation attends 45th Annual BPNA Conference

The Lily Foundation was in Liverpool last week to attend the 45th British Paediatric Neurology Association Annual Conference 2019.

Two people tandom sky diving with their arms out

Personal stories Fundraising
29 January 2019

Take a leap for Lily

A tandem skydive is an unforgettable thrill and a great way to fundraise for The Lily Foundation, writes Morgan Gillam.

A young man pushes a boy in a wheel chair along a path next to a river

Personal stories
25 January 2019

My son the young carer

I'm so proud of my son for caring for his younger brother who has mitochondrial disease – but now that he's leaving home we're not sure how we'll cope, writes Alison Haywood.

A silhouette of a women running Infront of the sun

Fitness
18 January 2019

How to improve your running posture

Good posture is key to an efficient, comfortable running style. Use these expert tips and video from personal trainer Jenny Dixon to transform your training today.

The back of a person legs in capri running tights and pink trainers

Fitness
10 January 2019

Warm-up act

New to running and not sure how to warm up before setting off? Personal trainer Jenny Dixon shares her warm-up routine for beginner runners, with some easy dynamic stretches to help keep you limber in cold weather.

A man crouches next to a little boy with mitochondrial disease in a wheelchair

Events Fundraising
5 December 2018

How you can help us raise £100,000

Can you help us smash our £100,000 fundraising target at the 2019 Lily Charity Ball? Check out our great value partnership opportunities and help make a difference for families affected by mitochondrial disease.

A pair of gloved hands use a micro pipette

Research
5 December 2018

Lily teams up with NHS specialists in Oxford to share clinical expertise on child mito cases

The Lily Foundation has continued its strong working partnership with the NHS by co-funding a clinical studies day with leading mitochondrial disease specialists in Oxford.

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