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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Research
12 July 2018

Meet the Researcher

Armed with Charlie her sub-cellular microscope, Eszter Dombi is part of a new generation of talented scientists leading the way in the field of mitochondrial research. Here she talks about her Lily-funded lab work at John Radcliffe Hospital, Oxford.

Research
6 July 2018

Helping from the heart

A mitochondrial research nurse based at John Radcliffe Hospital in Oxford and funded by The Lily Foundation, Colwynn Phillips represents the best of our charity's fruitful working relationship with the NHS. Here she talks about her dual role supporting affected families and coordinating a patient cohort.

Support
29 June 2018

Lily and the NHS: A partnership worth celebrating

This July the National Health Service turns 70. To celebrate we've put together five key ways in which The Lily Foundation works closely with the NHS to support patients and families affected by mitochondrial disease. It's a unique partnership between a small, specialised charity and one of the world’s largest publicly funded health services, and one that we are immensely proud to uphold.

Research
24 May 2018

Mito conference news

The Lily Foundation recently attended two conferences to hear about the latest developments in mitochondrial disease research. These were the 11th Annual UK Neuromuscular Translational Research Conference at Fitzwilliam College, Cambridge, and Mitochondrial Medicine 2018 at the Wellcome Genome Campus in Hinxton. Here we share some of the highlights from both events.