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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Events Personal stories
8 April 2025

Stepping into the ring to fight for a special cause

Harry and Finn, two brave young men who have never set foot in a boxing ring before, have signed up to take part in Lily Fight Night this May. They’d never heard of mitochondrial disease or The Lily Foundation before, so ahead of the big fight we asked them why they’re putting their youthful bodies and good looks on the line for a cause they’ve only just discovered.

Personal stories Awareness
21 February 2025

What’s it like to be rare?

Rare Disease Day is on February 28th, a day dedicated to raising awareness about the millions of people worldwide living with a rare disease. To shed light on this important issues, we asked Amy, a young woman living with mitochondrial disease, to tell us what it’s like to be rare.

Personal stories Awareness Fundraising
24 August 2024

Running in the family

When baby Lily came into the world 18 years ago, no one could have guessed the legacy she would leave behind. To commemorate what would have been her 18th birthday this month, her family have signed up to take on a very special collective challenge, and they need your support to get them over the line.