There’s plenty going on in the mitochondrial disease community, and you can learn all about our work and the support we offer, and read the latest news articles and blogs from across all areas of our charity here.
From personal stories about families affected by a mitochondrial disease diagnosis to the latest mitochondrial research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.
Filter by category:
All Articles Support Research Events Personal stories Awareness Fundraising Fitness
Events
Fundraising
3 October 2017
Who needs the British Masters when we have our fabulous Lily Golf Day? This year's event, proved a big hit as usual, helped by blue skies and sunshine at the beautiful Croham Hurst Golf Club in Surrey.
Personal stories
3 October 2017
Congratulations to our daring duo Jon Milne and Sailor Swift, who have made a great start to their circumnavigation of the globe in aid of Lily Foundation. Jon and his teddy bear sidekick, who are sailing in the Clipper Round The World yacht race to raise awareness about mitochondrial disease, have already raised over £1000 on the first leg of their voyage.
Research
3 October 2017
Supporting medical research into mitochondrial disease is a key part of our work at The Lily Foundation. It's consistent with our long-term goal of finding a cure for mito, and also brings life-changing benefits to people who are living with the disease today. Here we look at a promising study that’s currently underway at University College London.
Awareness
3 October 2017
The Lily 'Bare Your Sole' campaign for Mitochondrial Disease Awareness Week was a big success, raising awareness of the genetic disorder in homes, schools, hospitals and businesses across the country.
Research
1 September 2017
A recent study has reported that levels of FGF-21 in blood could prove useful in the diagnosis of mitochondrial disease, leading to an improved diagnostic pathway that reduces the need for muscle biopsy
Personal stories
25 July 2017
Our thoughts and prayers are with Chris Gard, Connie Yates and of course their son Charlie Gard today, as they have been for the last eight months.
Research
Awareness
17 July 2017
We’re excited to share some recent updates on the diagnosis and potential treatments of mitochondrial disease which were discussed at the Patient Meeting of Euromit 2017 in Cologne, Germany, recently.
Research
31 May 2017
Is there a link between mitochondrial disease and epilepsy? A recent study investigating the link between mitochondrial diseases and epilepsy found that one in five adult mitochondrial disease patients experience seizures.
Research
Awareness
4 May 2017
Alison and Lyndsey from The Lily Foundation were in attendance at the tenth Neuromuscular Translational Conference in London recently, where there were a number of exciting updates on potential treatments to help in the fight against mitochondrial disease.
If you have any problems please email [email protected]
