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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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A group of adults sat all looking at one adult who is expressively holding their arms out

Research
27 September 2022

A patient-centric partnership

The Lily Foundation works with various global pharmaceutical companies to help raise awareness of mitochondrial disease amongst employees and ensure a patient-focused approach to research. We asked Chelsea Moran, Associate Director of Patient Partnerships at Astellas, to tell us why pharma is now turning its ear to patients.

A group of adults sat around a large table all looking at a woman stood in front of a flip chart holding a pen

Support Research Events
23 August 2022

Lily teams up with Oxford University Hospitals to host mito study day

The Lily Foundation has teamed up with Oxford University Hospitals to host a study day for medical professionals caring for people with mitochondrial diseases.

A hand in a blue medical glove holding a micropipette tube. Behind the hand is a medical testing device

Research
22 August 2022

Lily research funding call opens September 19th

The Lily Foundation's annual research call opens to applicants this September, allowing scientists studying treatments for mitochondrial diseases to apply for funding.

Research Awareness
22 August 2022

Lily Foundation's Katie Waller elected to IMP board

The Lily Foundation is very proud to announce the election of staff member Katie Waller to the board of International Mito Patients (IMP).

A man is sat on the floor smiling looking at a boy who is using a walker, on his lap is another child wearing a fox mask

Support Events
28 July 2022

Lily Family Weekend 2022

Lily Family Weekend made its long-awaited return earlier this month, giving families affected by mitochondrial disease a precious chance to spend quality time together in a safe, supportive environment.

An adult is holding a pill in one hand and a glass of water in the other

Research
27 July 2022

Clinical trials: a clear sign of progress in the fight against mitochondrial disease

The recent rise in the number of clinical trials of treatments for mitochondrial disease shows how far we've come in the last 15 years, writes our Head of Research, Alison Maguire.

two women stand in a boxing ring one is holding her arm up in the air next to a man talking into a microphone

Events Fundraising
22 June 2022

Lily Fight Night takes a swing at mito with £28,000 raised

The return of Lily Fight Night after a two-year absence always promised to be a big occasion, and we're delighted to report it didn’t disappoint!

A head shot of Professor Doug Turnbull in a suit wearing glasses and a blue tie

Research Personal stories
21 June 2022

Prof Sir Doug Turnbull becomes Patron of The Lily Foundation

The Lily Foundation are delighted to announce that Professor Sir Doug Turnbull, a leading expert in mitochondrial disease and former Director of the Wellcome Centre for Mitochondrial Research (WCMR), has joined the charity as its Patron.

A head shot of two women wearing sunglasses holding drinks up to the camera

Personal stories
2 June 2022

Carers Week 2022

This Carers Week (6-12 June) we get an insight into the life of an unpaid carer from Nicolette Darch, who cares for her adult daughter Sian, who has mitochondrial disease.

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