News Page 18
The Lily Foundation logo featuring a butterfly, hearts and an 'x' for a kiss

Fighting mito,
finding hope.

News

Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

Filter by category:

All Articles Support Research Events Personal stories Awareness Fundraising Fitness

Research
3 May 2021

Research Focus: TRANSFORM therapy

The Lily Foundation is funding a study into a potentially life-changing new treatment for mitochondrial patients affected by epileptic seizures. Here to tell us about it is Dr Albert Lim, part of the research team at the Wellcome Centre for Mitochondrial Research in Newcastle.

Research
25 February 2021

Lily and partners fund £80k study into mito and neuropsychiatric diseases

The Lily Foundation is proud to announce its latest investment into scientific research to improve the lives of people with mitochondrial diseases. The charity is co-funding an £80,000 study to explore the links between mito and neuropsychiatric diseases – a blanket term that covers a broad range of medical conditions involving neurology and psychiatry.

Research
8 December 2020

Research Focus: Vestibular dysfunction

Amanda Male and Sarah Holmes are physiotherapists specialising in neuromuscular and vestibular rehabilitation. Here they talk about a new diagnostic framework they’ve developed to identify vestibular (inner ear) causes of balance problems in patients with a mitochondrial disease diagnosis.

Personal stories
30 September 2020

Mito stories: Tirion

Read the moving story of Tirion Ray, who died in 2018 after being diagnosed with mitochondrial disease, as told by her mother to The Bristol Post.