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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Personal stories
4 September 2020

Mito stories: Charlie

Charlie Withers tragically died aged 2, after being diagnosed with mito at 18 months. Read her story as told to The Sun by her mother, Anna.

Awareness
3 September 2020

Mito on Coronation Street

The Coronation Street storyline about Oliver Battersby, a boy with mitochondrial disease, is raising awareness about mito in a big way. We're here to remind people that the heartbreak unfolding on screen is being endured by hundreds of real families in the UK every day.

Support
6 July 2020

Left in lockdown

For parents of children like Coronation Street's Oliver Battersby, the end of lockdown is a long way off, writes the Lily Foundation's Liz Curtis

Support
3 July 2020

Happy birthday NHS!

This month marks 72 years since the NHS was established. To mark the occasion, we're focusing on some of the ways The Lily Foundation works with the NHS to support people with mitochondrial diseases. It's a partnership we're immensely proud of, and one that brings real, lasting benefit to patients and their families.