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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Support Events
28 July 2022

Lily Family Weekend 2022

Lily Family Weekend made its long-awaited return earlier this month, giving families affected by mitochondrial disease a precious chance to spend quality time together in a safe, supportive environment.

Support
27 January 2022

Lily joins BearHugs scheme to deliver joy to those who need it most

One of the worst aspects of living with a mitochondrial disease, or in fact any serious illness, is the terrible feeling of isolation it can cause. As the Covid pandemic has shown, being stuck indoors day after day, denied physical activities and opportunities to socialise, can quickly become a living hell. A single moment of connection and warmth can make a huge difference.

Support
6 July 2020

Left in lockdown

For parents of children like Coronation Street's Oliver Battersby, the end of lockdown is a long way off, writes the Lily Foundation's Liz Curtis

Support
3 July 2020

Happy birthday NHS!

This month marks 72 years since the NHS was established. To mark the occasion, we're focusing on some of the ways The Lily Foundation works with the NHS to support people with mitochondrial diseases. It's a partnership we're immensely proud of, and one that brings real, lasting benefit to patients and their families.