News. categories: Support,Research,Events,Personal stories,Awareness,Fundraising,Fitness - The Lily Foundation Page 2
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News

Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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All Articles Support Research Events Personal stories Awareness Fundraising Fitness

Support
14 April 2023

Your money matters for Lily’s newest recruit

As part of our mission to support families affected by mitochondrial disease, we believe that should cover financial support too. So we’re delighted to welcome our new Benefits Advisor, Chrissy, to the Lily team. We caught up with her to see how she’s planning to help mito patients and their families navigate the tricky topic of financial welfare.

Support Personal stories
30 March 2023

No one’s voice should go unheard

What would you do if you knew that one day you’d no longer be able to speak, talk to your family or chat with your friends? That’s the reality for mito patient Bal, whose voice is rapidly deteriorating, and who’s ready to spread the word about the positive effects of voice banking.

Support
27 February 2023

Introducing our Lily Wish Fund

For 15 years now we’ve been providing much-needed support to sufferers of mitochondrial disease, their families and carers. There are lots of ways to make the lives of affected families easier and more enjoyable, but they can come at a price. And that’s why we’re delighted to launch the Lily Wish Fund.

Support Research
3 February 2023

"The one place we can be ourselves"

At the recent 49th British Paediatric Neurology Association conference in Edinburgh, we found ourselves one of just eight exhibitors invited to host a stand and display our work. What’s more, we were excited to discover that The Lily Foundation were the only charity selected to deliver an oral presentation at the event.