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finding hope.

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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Research
9 November 2023

Lily-sponsored researcher wins prize for mitochondrial disease thesis

Back in December 2019, we were delighted to announce the latest addition to our Lily-funded mitochondrial disease research team, PhD student Yasmin Tang. Nearly four years on, not only has Yasmin completed her PhD but she’s been awarded the Faculty Doctoral Thesis Prize for her studies. Proof that we only back the best here at The Lily Foundation!

Research
26 October 2023

Something EPIC has arrived

Research is the key to finding treatments and an eventual cure for mitochondrial disease, and we believe the real experts are the people living with the disease. That’s why we’re launching a new Expert Patient Input Committee – in short, EPIC: a committee made up entirely of people affected by mito who are willing to share their experiences to help shape research, clinical care and treatments.

Research
12 September 2023

Hope for future mitochondrial research on the horizon

Everyone at The Lily Foundation was delighted to hear the recent news that the UK is to rejoin Horizon Europe, the EU’s key funding programme for research and innovation. The scheme provides access to a huge pot of money that UK-based scientists and institutions will be able to apply for again, so naturally brings hope of further research into treatments for mitochondrial diseases.

Research Awareness
26 July 2023

Celebrating 15 years of… partnerships

As we continue to celebrate our milestone 15th year improving the lives of mitochondrial disease patients, this month we’re focusing on the partnerships we’ve created over those 15 years that have helped us build our charity and expand the mito community at home and around the world.