News. categories: Support,Research,Events,Personal… Page 11
The Lily Foundation logo featuring a butterfly, hearts and an 'x' for a kiss

Fighting mito,
finding hope.

News

Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

Filter by category:

All Articles Support Research Events Personal stories Awareness Fundraising Fitness

Research
24 May 2018

Mito conference news

The Lily Foundation recently attended two conferences to hear about the latest developments in mitochondrial disease research. These were the 11th Annual UK Neuromuscular Translational Research Conference at Fitzwilliam College, Cambridge, and Mitochondrial Medicine 2018 at the Wellcome Genome Campus in Hinxton. Here we share some of the highlights from both events.

Research
18 May 2018

Unlocking NR

Nicotinamide Riboside (NR) is a form of vitamin B3 hyped for its alleged anti-ageing properties, but research shows it could be a treatment for mitochondrial disease. The Lily Foundation has recruited Dr Alex Clout, of UCL's School of Pharmacy and Institute of Neurology, to develop a formulation for patient trials.

Research
27 December 2017

The DNA detective

Ines Barbosa is a bioinformatician on the Lily Exome Sequencing Project, a landmark initiative that helps patients with mitochondrial disease discover the exact genetic cause of their illness. Since its launch in 2014 the project has been a huge success, identifying 32 new causative genes and providing 72% of patients tested with a confirmed or highly probable genetic diagnosis. We caught up with Ines at her lab in Guy's and St Thomas' Hospital to find out more about her work.