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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Research
30 April 2019

Q&A with Dr Alex Dorenbaum

As trials begin for a new medicine to treat mitochondrial myopathy, we talk to Dr Alex Dorenbaum, Chief Medical Officer of Reneo Pharmaceuticals, about his hopes for the drug and why his company is working with The Lily Foundation.

Research
16 October 2018

Outsmarting a syndrome

How do you smuggle health-giving enzymes past the body's natural immune system? A Lily-funded project to develop a therapy for MNGIE syndrome is tackling that problem, and looks set to expand scientific understanding of mitochondrial disease in the process. We hear from Dr Bridget Bax, the project's principal investigator at St George's University in London, and postdoctoral research assistant Michelle Levene.