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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Research
16 October 2018

Outsmarting a syndrome

How do you smuggle health-giving enzymes past the body's natural immune system? A Lily-funded project to develop a therapy for MNGIE syndrome is tackling that problem, and looks set to expand scientific understanding of mitochondrial disease in the process. We hear from Dr Bridget Bax, the project's principal investigator at St George's University in London, and postdoctoral research assistant Michelle Levene.

Research
12 July 2018

Meet the Researcher

Armed with Charlie her sub-cellular microscope, Eszter Dombi is part of a new generation of talented scientists leading the way in the field of mitochondrial research. Here she talks about her Lily-funded lab work at John Radcliffe Hospital, Oxford.

Research
6 July 2018

Helping from the heart

A mitochondrial research nurse based at John Radcliffe Hospital in Oxford and funded by The Lily Foundation, Colwynn Phillips represents the best of our charity's fruitful working relationship with the NHS. Here she talks about her dual role supporting affected families and coordinating a patient cohort.