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News

Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Events Fundraising
5 December 2018

How you can help us raise £100,000

Can you help us smash our £100,000 fundraising target at the 2019 Lily Charity Ball? Check out our great value partnership opportunities and help make a difference for families affected by mitochondrial disease.

Events Fundraising
26 November 2018

Take aim at mito with a Lily darts night at Flight Club

Flight Club is a brand new Lily event that takes the competitive fun of pub darts to a whole other level. Bring a team of friends along and let's take aim at mito!

Events Fundraising
23 November 2018

Lily Comedy Night tickets go on sale on Dec 3rd!

Tickets are now available for Lily Comedy Night 2019, with Alan Davies and Romesh Ranganathan among a host of top acts scheduled to perform on the night.

Fundraising
21 November 2018

5 easy ways to support Lily this festive season

2018 has been a really busy year for The Lily Foundation! We're funding more research, helping more families and making more noise about mitochondrial disease than ever before – and it's all been possible thanks to you, our amazing supporters!

Personal stories Fundraising
24 July 2018

Action hero Neil targets the triple for brave James, 9

Lily fundraiser Neil Harper has a London Classics medal in his sights as he takes on the RideLondon-Surrey 100 for his friend James, who has mitochondrial disease.

Events Fundraising
27 April 2018

What a belter! Lily Fight Night 2018 raises a record £61k

Amateur boxers dealt a heavyweight blow to mitochondrial disease as Lily Fight Night 2018 raised a record £61k. Sky's Sam Hall was ringside.

Events Fundraising
24 April 2018

Team Lily smashes London Marathon as £38,000 raised to fight mitochondrial disease

There were sore feet, aching limbs and huge smiles all round after Team Lily put in a heroic performance at the London Marathon.

Personal stories Fundraising
13 April 2018

A marathon effort in the fight against mito

As Team Lily limbers up for the 2018 London Marathon, Kat Kitto recalls how she ran the biggest race of her life for her daughter Poppy, who has mitochondrial disease.

Awareness Fundraising
10 April 2018

Peter Kay charity screenings raise over £34,000 to fight mitochondrial disease

The Lily Foundation is delighted to share news that Peter Kay’s charity screenings of Car Share have raised more than £34,000 to help fight mitochondrial disease. That money will be invaluable in helping us fund research into treatments and support patients and their families affected by the condition.

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