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finding hope.

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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Fundraising
18 May 2022

Jim Moir among top comedians to auction artworks for Lily

Jim Moir (Vic Reeves) is one of five top comedians whose artworks will be auctioned to raise money for charities including The Lily Foundation this month.

Fundraising
21 April 2022

Fitness coach to run 3 ultra-marathons in a month for client with mito

A fitness coach whose client has mitochondrial disease is aiming to run three ultra marathons in a month to raise awareness about the condition.

Awareness Fundraising
11 April 2022

Josh Widdicombe gives £20,000 Tipping Point jackpot to The Lily Foundation

Celebrity comedian Josh Widdicombe raised a cheer from the mito community after he won £20,000 on Tipping Point: Lucky Stars and gave it to The Lily Foundation.

Personal stories Fundraising
23 March 2022

Release your inner fundraiser!

After losing their 18-month-old son, Aidan, to mito, Simon and Lucy dedicated themselves to supporting other mito families and fundraising to find a cure. Here the couple share their tips on how to make a difference, from running a marathon to nailing a corporate sponsorship pitch.

Personal stories Fundraising
22 December 2021

'Magical Owl Tree' raises £4000 for mito families

Our supporters are always coming up with new and creative ways to raise funds and awareness about mitochondrial disease. None more so than Michael and Maxine Heyburn, who have raised over £4000 by transforming an old ash tree into a beautiful owl sculpture.

Events Fundraising
7 December 2021

Lily Ball raises over £85,000 for young adults affected by mito

The guest list may have been studded with soap stars, but it was young people fighting serious illness who the stole the show at The Lily Foundation's annual charity ball on Saturday night.

Fundraising
25 November 2021

Bendac Group lights up lives as Lily corporate partner

We're delighted to share the fantastic news that Bendac Group has committed to fighting mitochondrial disease by joining The Lily Foundation as a corporate partner.

Personal stories Fundraising
25 November 2021

Why I made the leap into Lily fundraising

I couldn't save my two daughters from mitochondrial disease, but now I'm doing what I can to help others, writes skydiving Lily fundraiser Sarah Moore.

Fundraising
16 September 2020

Corrie twins fundraise for The Lily Foundation

The young twins who play Oliver Battersby, the boy diagnosed with mitochondrial disease in a heartbreaking Coronation Street storyline, have helped real-life sufferers of the genetic condition with a Corrie-themed fundraiser in support of The Lily Foundation.

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