There’s plenty going on in the mitochondrial disease community, and you can learn all about our work and the support we offer, and read the latest news articles and blogs from across all areas of our charity here.
From personal stories about families affected by a mitochondrial disease diagnosis to the latest mitochondrial research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.
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Personal stories
Fundraising
23 March 2022
After losing their 18-month-old son, Aidan, to mito, Simon and Lucy dedicated themselves to supporting other mito families and fundraising to find a cure. Here the couple share their tips on how to make a difference, from running a marathon to nailing a corporate sponsorship pitch.
Personal stories
Fundraising
22 December 2021
Our supporters are always coming up with new and creative ways to raise funds and awareness about mitochondrial disease. None more so than Michael and Maxine Heyburn, who have raised over £4000 by transforming an old ash tree into a beautiful owl sculpture.
Events
Fundraising
7 December 2021
The guest list may have been studded with soap stars, but it was young people fighting serious illness who the stole the show at The Lily Foundation's annual charity ball on Saturday night.
Fundraising
25 November 2021
We're delighted to share the fantastic news that Bendac Group has committed to fighting mitochondrial disease by joining The Lily Foundation as a corporate partner.
Personal stories
Fundraising
25 November 2021
I couldn't save my two daughters from mitochondrial disease, but now I'm doing what I can to help others, writes skydiving Lily fundraiser Sarah Moore.
Fundraising
25 October 2021
We've partnered with two popular fundraising schemes – Give as you Live and EasyFundraising – that support UK charities by donating a percentage of the price of the items you buy online.
Fundraising
26 October 2020
Did you know you can help fight mitochondrial disease this Christmas just by shopping online – at no extra cost to you? We’ve partnered with two popular schemes to help make every penny count.
Fundraising
16 September 2020
The young twins who play Oliver Battersby, the boy diagnosed with mitochondrial disease in a heartbreaking Coronation Street storyline, have helped real-life sufferers of the genetic condition with a Corrie-themed fundraiser in support of The Lily Foundation.
Personal stories
Fundraising
24 June 2020
Theo Amani-Gibbs has mitochondrial disease, but has taken on a 20-mile walking / pedalling challenge for My Mito Miles, the virtual fundraising event organised by The Lily Foundation.
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