Fighting mito,
finding hope.

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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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All Articles Support Research Events Personal stories Awareness Fundraising Fitness

Events Fundraising
9 May 2023

50 fabulous fundraisers smash six-figure sum at London Marathon

It may have been a soggy one at this year’s London Marathon, but the rain didn’t dampen the spirits of our amazing runners, nor those of our rowdy cheer squads who yelled and shouted from beneath umbrellas and waterproofs to spur our athletes along the 26.2-mile course.

Events Fundraising
4 May 2023

Lily Fight Night packs a punch to raise over £18,000

There’s always a sense of anticipation leading up to Lily Fight Night, and this year was no different. Over 350 spectators packed into The Clapham Grand, eager to watch our fundraising fighters, with many more tuning in to enjoy the action via our YouTube live stream. And the evening certainly lived up to expectations!

Personal stories Fundraising
14 April 2023

The mito ‘action man’ with a mountain to climb

If you couldn’t walk, couldn’t see properly and suffered a severe lack of energy, climbing a mountain probably wouldn’t be top of your ‘to do’ list. Not so for mitochondrial disease patient Ian, who has set himself the remarkable challenge of summitting Yr Wyddfa (Snowdon) this summer.

Events Personal stories Fundraising
6 April 2023

Unfinished business at the London Marathon

Three years ago, on the day of her son Harry’s 10th birthday, Donna should have been running the London Marathon, raising funds to help fight mitochondrial disease. But the pandemic was sweeping across the globe and the race was cancelled.

Events Fundraising
4 April 2023

Meet the heavyweight hopefuls punching well above their weight

It’s the biggest night in boxing history since The Rumble in the Jungle… Secure your ringside seat today to witness The Clash at the Clapham, part of the famous Lily Fight Night taking place on Thursday 27th April at the iconic Clapham Grand in London.

Events Fundraising
14 March 2023

15th anniversary Lily Ball raises over £75,000

We may have just had The Oscars but there was just as much glitz at The Lily Foundation's annual charity ball, which had its share of dazzling dresses, glamorous guests and moving speeches. But the real stars of the show were the young adults who stole everyone’s hearts with their poignant accounts of the reality of living with mitochondrial disease.

Events Fundraising
27 February 2023

News

Stay connected with the mitochondrial disease community

50 fabulous fundraisers smash six-figure sum at London Marathon

Lily Fight Night packs a punch to raise over £18,000

The mito ‘action man’ with a mountain to climb

Unfinished business at the London Marathon

Meet the heavyweight hopefuls punching well above their weight

15th anniversary Lily Ball raises over £75,000

Still funny after 15 years!

Celebrating 15 years of... Lily fundraising

Lily Fight Night takes a swing at mito with £28,000 raised

News

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