There’s plenty going on in the mitochondrial disease community, and you can learn all about our work and the support we offer, and read the latest news articles and blogs from across all areas of our charity here.
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Personal stories
Awareness
Fundraising
24 August 2024
When baby Lily came into the world 18 years ago, no one could have guessed the legacy she would leave behind. To commemorate what would have been her 18th birthday this month, her family have signed up to take on a very special collective challenge, and they need your support to get them over the line.
Personal stories
Fundraising
25 June 2024
When his son Jude was diagnosed with mitochondrial disease, like so many other parents Dale had never heard of the condition. But since that day he’s made it his mission to spread the word about our work, doing more than his fair share in the fight against mito.
Events
Fundraising
6 June 2024
Lily’s very first South West Golf Day tee’d off to great success at Cumberwell Park Golf Club in beautiful Wiltshire last Friday. Thanks to everyone who turned up to enjoy some golf and good fun whilst raising valuable funds to help fight mitochondrial disease.
Events
Fundraising
31 May 2024
Can you donate a ‘money can’t buy’ auction or raffle prize to a Lily charity event to help improve the lives of affected patients and their families and fund research into mitochondrial disease?
Events
Fundraising
9 May 2024
More than 500 excited spectators piled into The Clapham Grand for this year’s Lily Fight Night, eager to experience one of the most popular events in our calendar. They were treated to 11 fantastic fights, with many more supporters following the action via our YouTube live stream.
Events
Fundraising
2 May 2024
Applied for a place in the ballot for next year’s London Marathon? From dedicated cheering squads to free beer and a massage, here are five great reasons to run this once-in-a-lifetime challenge for The Lily Foundation and help fight mitochondrial disease.
Events
Fundraising
25 April 2024
A huge shoutout to all the incredible Lily runners who completed the London Marathon last weekend, raising an incredible £127,000 to help fight mitochondrial disease.
Personal stories
Fundraising
4 January 2024
Waistband a bit tight after all the festive indulgence? Why not sign up for a Lily event like our Operations Manager Claire, who’s taking on her biggest fitness challenge yet in 2024 – the London Marathon.
Events
Fundraising
21 December 2023
Tickets are selling fast for next year’s Comedy Night, which got us wondering what it is about this event that makes it so successful. Over the years we’ve seen sell-out show after sell-out show featuring star-studded line ups including Tim Vine, Josh Widdicombe, Alan Davies, Joe Pasquale, Shaun Walsh, Sarah Millican, Marcus Brigstock, Katherine Ryan and many more.
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