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finding hope.

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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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All Articles Support Research Events Personal stories Awareness Fundraising Fitness

A woman stands at the front of a room holding a microphone talking to a group of people

Support Events
10 March 2023

Oxford Patient Information Evening 2023

Last week saw the first in-person mitochondrial disease Patient Information Evening since the COVID-19 pandemic, and it’s clear from the attendance – and distances travelled – that everyone was delighted to be able to come together in person once again.

Kevin Day on stage at the Lily Comedy Night

Events Fundraising
27 February 2023

Still funny after 15 years!

What do you get when you cross several side-splitting stand-ups with a fantastic charity? A winning formula for the legendary Lily Comedy Night, of course!

A smiling woman in front of a climbing wall in a specially adapted harness

Support Events
26 October 2022

Lily Young Adult Weekend 2022

Young people with mitochondrial disease enjoyed an action-packed trip to the Lake District when The Lily Foundation hosted its second annual Young Adult Support Weekend.

A group of adults sat around a large table all looking at a woman stood in front of a flip chart holding a pen

Support Research Events
23 August 2022

Lily teams up with Oxford University Hospitals to host mito study day

The Lily Foundation has teamed up with Oxford University Hospitals to host a study day for medical professionals caring for people with mitochondrial diseases.

A man is sat on the floor smiling looking at a boy who is using a walker, on his lap is another child wearing a fox mask

Support Events
28 July 2022

Lily Family Weekend 2022

Lily Family Weekend made its long-awaited return earlier this month, giving families affected by mitochondrial disease a precious chance to spend quality time together in a safe, supportive environment.

two women stand in a boxing ring one is holding her arm up in the air next to a man talking into a microphone

Events Fundraising
22 June 2022

Lily Fight Night takes a swing at mito with £28,000 raised

The return of Lily Fight Night after a two-year absence always promised to be a big occasion, and we're delighted to report it didn’t disappoint!

Lily Foundation Charity Ball - live band singing against a mutli-coloured rainbow ribbon backdrop

Events Fundraising
7 December 2021

Lily Ball raises over £85,000 for young adults affected by mito

The guest list may have been studded with soap stars, but it was young people fighting serious illness who the stole the show at The Lily Foundation's annual charity ball on Saturday night.

Three people smiling through a frame covered in Lily foundation butterflies

Events Fundraising
12 February 2020

A good giggle for a great cause

Comedy Night is always one of the most eagerly anticipated dates on the Lily calendar, and this year's event did not disappoint!

A girl in a climbing harness and helmet is suspended in the air

Support Events
5 December 2019

Lily Young Adult Weekend

Young adults with mitochondrial disease enjoyed a 'simply brilliant' weekend in the Lake District when the Lily Foundation held its first ever Young Adult Weekend.

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