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Fighting mito,
finding hope.

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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Personal stories Awareness
13 September 2018

771 miles in 7 days for Charlie

Charlie was just two years old when she lost her battle with mito. To mark Mito Awareness Week, her Uncle Mike is cycling 771 miles - one for every day of Charlie's life. Here Charlie's dad Steve tells the story.

Awareness Fundraising
10 April 2018

Peter Kay charity screenings raise over £34,000 to fight mitochondrial disease

The Lily Foundation is delighted to share news that Peter Kay’s charity screenings of Car Share have raised more than £34,000 to help fight mitochondrial disease. That money will be invaluable in helping us fund research into treatments and support patients and their families affected by the condition.

Research Awareness
17 July 2017

Highlights of Euromit 2017

We’re excited to share some recent updates on the diagnosis and potential treatments of mitochondrial disease which were discussed at the Patient Meeting of Euromit 2017 in Cologne, Germany, recently.