There’s plenty going on in the mitochondrial disease community, and you can learn all about our work and the support we offer, and read the latest news articles and blogs from across all areas of our charity here.
From personal stories about families affected by a mitochondrial disease diagnosis to the latest mitochondrial research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.
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Awareness
Fundraising
29 March 2018
The actor and comedian Peter Kay today announced that he will donate all profits from a special screening of Car Share at Blackpool Opera House to The Lily Foundation. We’re delighted to hear this wonderful news and incredibly grateful to Peter for his generosity.
Research
Awareness
23 March 2018
Did you know there are links between mitochondrial disease and autism spectrum disorder (ASD)? To mark Autism Awareness Week (March 26 - April 2) we've put together 10 facts that highlight those links.
Awareness
3 October 2017
The Lily 'Bare Your Sole' campaign for Mitochondrial Disease Awareness Week was a big success, raising awareness of the genetic disorder in homes, schools, hospitals and businesses across the country.
Research
Awareness
17 July 2017
We’re excited to share some recent updates on the diagnosis and potential treatments of mitochondrial disease which were discussed at the Patient Meeting of Euromit 2017 in Cologne, Germany, recently.
Research
Awareness
4 May 2017
Alison and Lyndsey from The Lily Foundation were in attendance at the tenth Neuromuscular Translational Conference in London recently, where there were a number of exciting updates on potential treatments to help in the fight against mitochondrial disease.
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