There’s plenty going on in the mitochondrial disease community, and you can learn all about our work and the support we offer, and read the latest news articles and blogs from across all areas of our charity here.
From personal stories about families affected by a mitochondrial disease diagnosis to the latest mitochondrial research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.
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Awareness
Fundraising
18 April 2019
Hearts melted at The Lily Chocolate Charity Ball when Jamie Theakston presented Liz with a cheque for £100,000! Valuable funds that will help support people affected by mitochondrial disease and fund pioneering research to find effective treatments.
Awareness
12 March 2019
This week is Brain Awareness Week and British Science Week. We talked to Shane Bell, a PhD student at the Wellcome Centre for Mitochondrial Research at Newcastle University, about his research that aims to improve mitochondrial function in brain cells.
Awareness
8 March 2019
I went from planning the end of my life to being a voice for other disabled and disadvantaged people. Here's what International Women's Day means to me. By Lucy Watts MBE
Awareness
4 March 2019
Do you know an amazing mother to a child with mitochondrial disease? Share her story this Mother's Day and help raise awareness of this incurable genetic disorder.
Awareness
1 February 2019
The Lily Foundation was in Liverpool last week to attend the 45th British Paediatric Neurology Association Annual Conference 2019.
Personal stories
Awareness
13 September 2018
Charlie was just two years old when she lost her battle with mito. To mark Mito Awareness Week, her Uncle Mike is cycling 771 miles - one for every day of Charlie's life. Here Charlie's dad Steve tells the story.
Awareness
7 September 2018
The Lily Foundation is delighted to be supported by Global's Make Some Noise, an amazing national campaign that gives valuable radio airtime to small charities who are changing young lives.
Awareness
18 May 2018
The Lily Foundation is set to have its message about mitochondrial disease heard on popular radio stations throughout the UK after being selected as a 2018 Make Some Noise charity.
Awareness
Fundraising
10 April 2018
The Lily Foundation is delighted to share news that Peter Kay’s charity screenings of Car Share have raised more than £34,000 to help fight mitochondrial disease. That money will be invaluable in helping us fund research into treatments and support patients and their families affected by the condition.
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