There’s plenty going on in the mitochondrial disease community, and you can learn all about our work and the support we offer, and read the latest news articles and blogs from across all areas of our charity here.
From personal stories about families affected by a mitochondrial disease diagnosis to the latest mitochondrial research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.
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Awareness
21 May 2020
Awareness about mitochondrial disease has soared since Coronation Street began its heartbreaking storyline involving a child who develops the condition.
Awareness
11 May 2020
Coronation Street star Jane Danson touched the hearts of hundreds of UK families affected by mitochondrial diseases when she highlighted their cause on This Morning.
Awareness
7 May 2020
Mitochondrial disease will be in the national spotlight this summer as Coronation Street, one of the UK's most watched TV soap operas, features a storyline about a child with this incurable genetic condition.
Research
Awareness
4 October 2019
The Lily Foundation is proud to announce its partnership with Euromit 2020, the world's largest ever international conference on mitochondrial disease, which will be held in Newcastle next summer.
Awareness
30 September 2019
The Lily Foundation would like to say a huge THANK YOU to everyone who participated in Global Mitochondrial Disease Awareness Week 2019. The event was a resounding success, raising awareness about mito around the world.
Awareness
13 September 2019
Battersea Power Station, Mersey Gateway Bridge, Leeds Castle and Blackpool Tower are among major UK landmarks lighting up green this week to raise awareness about mitochondrial disease.
Research
Awareness
12 September 2019
The Lily Foundation is proud to be a member of the Leigh Syndrome International Consortium, a newly formed group of international rare disease charities committed to improving clinical care for Leigh Syndrome patients around the world.
Awareness
Fundraising
8 July 2019
TV star Alan Davies has won £20,000 for The Lily Foundation after scooping the jackpot on Tipping Point: Lucky Stars. The money will help fund research and support patient affected by this incurable genetic condition.
Personal stories
Awareness
17 May 2019
After losing her young son to mitochondrial disease, walking hundreds of miles in his memory helped Melissa Streete cope with grief and raise awareness about the condition that took his life.
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