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Fighting mito,
finding hope.

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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Research Awareness
26 July 2023

Celebrating 15 years of… partnerships

As we continue to celebrate our milestone 15th year improving the lives of mitochondrial disease patients, this month we’re focusing on the partnerships we’ve created over those 15 years that have helped us build our charity and expand the mito community at home and around the world.

Personal stories Awareness
13 February 2023

What's it like to be rare?

It’s Rare Disease Day on February 28th, so to shine a spotlight on the millions of people around the world living with a rare disease, we asked mitochondrial disease patient Amy to tell us what it’s like to be rare.

Research Awareness
25 January 2023

On the road with the research team

It was a busy end to 2022 for Alison Maguire (Head of Research & Finance) and Katie Waller (Science & Patient Engagement Officer), who have been proudly representing The Lily Foundation at a range of recent mitochondrial disease events aimed at medical professionals, scientists and researchers.