The past months have been a painful reminder for many families who have had to face similar or the same terrible sadness for their children when it comes to dealing with a diagnosis of mitochondrial disease. It’s also a stark reminder for those who may have to face such sadness in the future. These are heart-breaking situations that no parent or child should ever ever have to face.
Mito is a truly horrible disease. The prognosis for sufferers is poor and there is currently no cure.
Yesterday was the culmination of events which highlighted that more research is critically needed and we must continue to fight to make sure that we do find a cure for mitochondrial disease.