Welcome to The Lily Foundation’s Research Zone – a new area dedicated to all things mito research!
Why have we launched a Research Zone?
Patients and families in our community have told us that finding accessible, reliable information about mitochondrial disease can be a significant challenge.
Mitochondrial disease is often complex and poorly understood by both the public and those affected. Many patients and families struggle to access clear, digestible details about the condition, its symptoms, its genetic basis and the latest treatment developments. Existing information may be too technical, fragmented across different sources or difficult to locate.
That’s where the Research Zone comes in – to bridge this gap and provide clear, accessible and up-to-date information to empower patients, families and the broader community.
What can you expect?
Now that we’ve launched our Research Zone, we’re excited to introduce the features that you’ll be seeing over the coming months:
- Research spotlight – get to know the brilliant minds behind mito research! From clinicians to researchers and early-career scientists, we’ll be highlighting the work going on behind the scenes in laboratories to improve understanding, diagnostics and find treatments for mito.
- Research on the road – ever wondered what the Lily Research Team get up to? Experience the excitement of conferences, study days and patient information sessions. Think of this as your backstage pass to the events that shape the future of mito research.
- PPIE round-up – stay updated with The Lily patient input committee, IMPACT, including insights into ongoing efforts to amplify the patient voice in mitochondrial disease research.
- Science unwrapped – complex research made simple! Discover engaging articles and videos that break down pioneering techniques and global research efforts – and learn how they’re driving progress for mito patients.
- Journal club – stay informed with easy-to-digest summaries of the latest research publications. We’ll share key messages, outputs and insights so you don’t miss a thing.
- Trials hub – keep up to date with the latest clinical trials. Explore more details about ongoing studies and stay in the loop with trial outcomes as they’re announced.
Be sure to check back regularly, sign up to our newsletters and follow us on our social channels so you don’t miss a thing.
The Research Zone is your place to explore, learn and connect with the world of mitochondrial disease research. We’re so excited to share this journey with you. Welcome to the Research Zone!