Balance difficulties are a common and debilitating symptom of mitochondrial disease, often caused by nerve damage or inner ear problems. These issues increase the risk of falls, leading to additional pain, distress and a reduced quality of life. To tackle this challenge, we’re investing over £70,000 in a pioneering research study to explore the potential of wearable technology to improve balance and enhance patient independence.

The project, led by Professor Robert Pitceathly and his team at University College London (UCL), is focused on developing a wearable sensor and smartphone app specifically tailored to the needs of mitochondrial disease patients. This cutting-edge technology aims to support patients in performing balance-improving exercises at home, offering reminders, progress tracking and motivational feedback.

Why this research matters

Current interventions for balance issues, such as physiotherapy or specific exercise regimens, can be difficult for patients to access regularly. Without consistent support, it’s challenging for many to stay motivated or maintain proper techniques. However, advances in wearable devices have made this technology more affordable and accessible, presenting an opportunity to revolutionise how patients manage their symptoms.

The research plan

The UCL team will begin by developing and refining the wearable sensor and app to ensure they meet the unique requirements of mitochondrial disease patients. An initial pilot study of 10 patients will test the usability and effectiveness of the technology, with direct input from patients. If successful, a larger clinical trial will evaluate its impact in improving balance and reducing the risk of falls.

The long-term vision

The ultimate goal is to empower patients with mitochondrial disease to exercise safely and effectively at home. By improving balance, the wearable technology could reduce fall-related injuries, help patients retain greater independence and significantly enhance their quality of life.

This project exemplifies our commitment to advancing research that directly addresses the challenges faced by mitochondrial disease patients. We’re excited to support innovative solutions that hold the promise of meaningful impact for those affected.