Research Zone. categories: Research on the road,Re… - The Lily Foundation
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Fighting mito,
finding hope.

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Research Zone

Welcome to The Lily Foundation’s Research Zone, your gateway to the latest breakthroughs, expert insights and cutting-edge developments in mitochondrial disease research.

Advancing mitochondrial disease research is vital for driving progress in understanding, diagnosing and treating this complex condition. The innovative projects and collaborations that are taking place right now are not only advancing science but also bringing hope to the patients and families who are part of our community.

Our hub will bring you the latest news, thought-provoking views and easy-to-understand summaries of ground-breaking studies. Stay connected with the people who are driving advances in mito research and explore how their pioneering work is paving the way towards better treatments and brighter futures, from clinical trials to emerging therapies. Step into a world where the fight against mitochondrial disease is happening every day.

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All Articles Research on the road Researcher spotlight PPIE round-up Science unwrapped Journal club Trials hub

Science unwrapped
19 March 2025

Exploring the past, present and future of mitochondrial disease research

Lily Research Manager Dr Maria O’Hanlon, alongside other professionals working in the mitochondrial disease space, recently participated in a RARE REV-inar series by RARE Revolution Magazine. The webinar explored the research landscape around mitochondrial disease from its history and key discoveries to current advancements and hopes for the future.

Researcher spotlight
27 February 2025

Advancing diagnosis, treatment and hope

Rare Disease Day on 28th February is a chance to reflect on the challenges faced by those living with rare conditions and to celebrate the advancements being made in research and treatment. At the LifeArc Centre for Rare Mitochondrial Diseases, leading experts are working to develop new diagnostic tools, biomarkers and therapies.

Research on the road PPIE round-up
12 February 2025

Representing the patient voice at the European Neuromuscular Centre meeting

The recent European Neuromuscular Centre (ENMC) meeting united researchers, clinicians and patient advocates to reshape clinical trials and outcome measures for primary mitochondrial myopathies (PMMs). With the patient voice at its core, our Head of Patient Programmes, Katie, reflects on how the meeting’s outcomes could transform care for individuals living with mitochondrial disease.

Researcher spotlight
5 February 2025

Revolutionary droopy eyelid treatment using red light therapy

The Lily Foundation supports research into all areas of mitochondrial disease, because we believe improving patients’ quality of life today is as important as finding a cure tomorrow. Discover how we’ve helped give the green light to a pioneering project examining how exposure to red light could potentially improve mitochondrial function.

Researcher spotlight
29 January 2025

The £7.5 million investment that’s transforming mitochondrial disease research

The launch of the £7.5 million LifeArc Centre for Rare Mitochondrial Diseases marks a transformative moment in mitochondrial disease research. In our exclusive interview, project lead Professor Patrick Chinnery shares how this groundbreaking initiative will advance diagnostics, treatments and patient care.

The Lily Foundation’s Research Zone is your go-to resource for mitochondrial disease news, views and research updates. Connect with the latest developments in genetics, cellular biology and mitochondrial dysfunction to better understand and manage mitochondrial disorders.