Young people affected by mitochondrial disease can take part in exciting adventures together
Young people living with mitochondrial disease come together for two days in the heart of the Lake District, with the chance to enjoy outdoor activities in a safe, fully accessible environment, with specialist support provided by a team of Lily volunteers and medical professionals.
Participants have the opportunity to try stimulating activities from zip wiring, high ropes and a wheelchair challenge course to rock climbing, bushcraft, cycling and horse riding. Thanks to specialist equipment, all the activities on offer are safe and accessible for all.
As well as challenging and supporting one another, there’s quality time to socialise for mitochondrial disease patients and accompanying carers and parents, who love the sense of togetherness, and feedback from participants has been overwhelmingly positive.
I’ve had the time of my life… So many precious memories that will last a lifetime. Indescribably grateful to Liz and the team for the privilege of being able to join such a special event with so many special people…”
— Danielle, 35, mitochondrial disease patient
Oxford Clinical Nurse Specialist Sue, who has helped out during the weekend on a couple of occasions, was almost lost for words when we asked her about its impact. “I can’t explain how great it is!” she said. “I gain so much insight into how these patients live day-to-day. I attended last year too, and there were a few quiet, reserved patients who this year came out shining with confidence. We all gain an awful lot from the weekend and grow as professionals in spending three days living alongside mitochondrial disease. It’s a privilege to be included.”
For more information about the weekend please email [email protected].
