Fighting mito,
finding hope.
A mitochondrial disease family support weekend event to connect, share experiences and find support.
Living with a diagnosis of mitochondrial disease can leave families feeling isolated and alone. The Lily Family Support Weekend is a unique opportunity for our families to get together and relax in a safe, caring environment where people just ‘get it’.
It’s been described as ‘special’, ‘wonderful’, ‘brilliant’, even ‘life changing’. One thing’s for sure, this residential support weekend is one of the most popular events in our Lily calendar.
It’s an opportunity for families to get together and relax in a safe, caring environment, and includes social activities, informative talks and workshops from the UK’s top mitochondrial doctors for the adults plus plenty of fun activities to keep little ones of all ages entertained.
With meals and childcare all taken care of, and plenty of Lily helpers on hand, adults are free to attend seminars, socialise or just enjoy some much-needed time off.
It was an amazing weekend to meet families who understand what we are going through. We learnt so much and also had some much-needed family time.”
We hear from mito parents Kerry and Sid about their experiences of attending The Lily Foundation Family Support Weekend in 2022.
This event is designed especially for families affected by mitochondrial disease. Their child may have received a diagnosis for the condition, or have suspected mito but with no confirmed diagnosis. Or they may have lost a child or children to mitochondrial disease.
The Lily Family Support Weekend is currently held once a year in either June or July. To find out more please email [email protected].
For further support from The Lily Foundation, take a look at our mitochondrial disease support page.
If you have any problems please email [email protected]
