Drug information

If you or a loved one has been diagnosed with mitochondrial disease, you may wonder about the safety of certain medications. Everyday medicines, even for minor ailments, can sometimes have unexpected effects for those with the condition.

To address these concerns, the International Mito Patients (IMP) initiative led a comprehensive study in 2020, gathering insights from experts around the world, including doctors, pharmacists and scientists. This research resulted in a carefully reviewed list that identifies medications considered safe for primary mitochondrial disease patients, along with those considered dangerous or to be used with caution or avoided.

While this list is a valuable guide, remember that any medication can have side effects unrelated to mitochondrial disease. Always consult your doctor before starting any new medication, and read the accompanying information for guidance.

For more details about this list, and about medicines for mitochondrial disease patients, visit the NHS Rare Mitochondrial Disorders Service website.