If you’ve received a mitochondrial disease diagnosis, The Lily Foundation charity can offer emotional support and practical advice as you navigate your illness.
Have you or a loved one been diagnosed with mitochondrial disease?
If you or someone you know has recently received a mitochondrial disease diagnosis, The Lily Foundation are here to offer compassionate, ongoing support.
Receiving a diagnosis can feel overwhelming and isolating, especially when mitochondrial disease is unfamiliar. You may have questions, fears and uncertainties about what lies ahead, including:
Is mitochondrial disease curable?
Can I live a normal life with mitochondrial disease?
What causes mitochondrial disease?
We’re here to help you navigate these questions, offering resources, guidance and a caring community so you don’t have to face these challenges alone.
Our support for patients and families
Whether you’re a patient, a parent, a sibling or a friend, we’re here to provide comprehensive support. Our resources and services are designed to help you manage the emotional, physical and practical aspects of mitochondrial disease, with a focus on improving quality of life.
Support for medical professionals
We also work closely with healthcare providers, offering up-to-date information on mitochondrial disorders to assist in the diagnosis, treatment and care of patients. Our goal is to empower medical professionals with the knowledge they need to support patients and their families effectively.
Our vision for the mitochondrial disease community
Our vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.
Together we’re navigating the complexities of mitochondrial disease:
today raising awareness of mito across the globe;
tomorrow unlocking the cure through pioneering research;
forever supporting the mito community and empowering everyone to make a difference.
Join our community – you’re not alone
We invite you to explore our website and learn more about our work, our mission and how you can connect with others who share your journey. Together we’re stronger, and together we’re making a difference.
