These are the key ways in which we’re making our way towards that world:
- Today raising awareness of mito across the globe: these are rare but severe genetic disorders that affect vital organs and often lead to early death or disability. Our first-hand understanding and experience of this life-altering inherited disease allows us to educate on the condition, increasing awareness of symptoms and prognosis and raising essential funds.
- Tomorrow unlocking the cure through pioneering research: mitochondrial disease is under-researched. Supporting medical research is a fundamental aspect of our work, not only because it could potentially lead to a cure but also because it helps to improve lives now. Lily-funded research projects have already resulted in faster, less invasive patient diagnosis and helped affected families to have healthy babies. Several promising avenues for new treatments are currently being explored, and the patient voice is at the heart of everything we do.
- Forever supporting the mito community and empowering everyone to make a difference: we’re dedicated to providing essential, ongoing support to mitochondrial disease patients, their families and designated carers. We work to empower patients and represent their voice across the mitochondrial landscape.
Mitochondrial disease is a very complex condition, and we’re navigating its complexities together, learning more about it every day. It affects people medically in a wide variety of ways, and every individual has their own needs and different – often very difficult – choices to make. We respect every family’s right to choose their own path in dealing with the disease.
We’ve built a close-knit community with compassion, kindness and knowledge at the heart of everything we do. A community that offers support and guidance to everyone affected by mitochondrial disease, helping them to find hope along a journey that can be extremely difficult to navigate alone.