There are three key ways in which we’re making our way towards that world:
- by educating, informing and raising public awareness about mitochondrial disease, its symptoms and prognosis
- by funding scientific research into mito in order to advance the search for effective treatments and an eventual cure
- by providing essential, ongoing support to mitochondrial disease patients, their families and designated carers.
Spreading the word to every corner of the globe
Our first-hand understanding and experience of this life-altering inherited disease allows us to educate on the condition, increasing awareness and raising essential funds. We strive to make a difference and provide education surrounding the condition, and everyone is empowered to spread the word within their local communities and further afield. Every day we’re increasing our knowledge about mitochondrial disease, and the more we learn, the more effectively we can work together to find our way.
Investment in research gets results
Supporting medical research is a fundamental aspect of our work, not only because it could potentially lead to a cure but also because it helps to improve lives now. Lily-funded research projects have already resulted in faster, less invasive patient diagnosis and helped affected families to have healthy babies. Several promising avenues for new treatments are also currently being explored, and the patient voice is at the heart of everything we do.
We’re with every patient on their journey
Mitochondrial disease is a very complex condition, and we’re navigating its complexities together, learning more about it every day. It affects people medically in a wide variety of ways, and every individual has their own needs and different – often very difficult – choices to make. We respect every family’s right to choose their own path in dealing with the disease.
We’ve built a close-knit community with compassion, kindness and knowledge at the heart of everything we do. A community that offers support and guidance to everyone affected by mitochondrial disease, helping them to find hope along a journey that can be extremely difficult to navigate alone.