Fighting mito,
finding hope.
Donate through JustGiving to help The Lily Foundation fight mito and find hope for patients and their families.
Our vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.
Together we’re navigating the complexities of mitochondrial disease; today raising awareness of mito across the globe; tomorrow unlocking the cure through pioneering research; forever supporting the mito community and empowering everyone to make a difference.
Mitochondrial disease, or ‘mito’, is a rare, complex and difficult-to-diagnose genetic disorder that affects people in very different ways. It can affect any organ at any age, and often occurs in babies and young children. There is currently no cure, but we’re working hard to change that, and are the largest charitable funder of mitochondrial research in Europe.
Mitochondrial dysfunction has been identified as a key factor in other more common diseases including dementia, Parkinson's disease, epilepsy and cancer. The research we fund and support not only holds promise for individuals with mitochondrial disorders, but has the potential to benefit millions of others too.
That’s why, despite being a little-known disease, mitochondrial disease could be the key to some of the most important medical breakthroughs of our time.
Raised
since 2007
Families
supported
Donated
to patients
Research projects
funded
In 2025, 80% of mitochondrial disease patients still do not have a confirmed genetic diagnosis, and that’s simply not good enough. Without a diagnosis, there is no chance of finding a cure, accessing treatment or being considered for clinical trials. For many, this also means limited reproductive options, which can be one of the hardest challenges to face.
Millie and Tony lost their beautiful baby boy, Otto, to mitochondrial disease back in 2023. For Millie, receiving a confirmed diagnosis for Otto was incredibly important. Here she shares her story and explains why having answers matters. It’s stories like theirs that fuel The Lily Foundation’s determination to make change.
Help us to support families like Millie and Tony, and work towards improving the lives of everyone affected by mitochondrial disease. Together, we can find hope and work towards life-changing breakthroughs.
Have you signed up to a Lily sporting event or charity challenge this year? Are you ready to kickstart your fitness journey? Professional running coach and personal trainer Jenny Dixon shares her top tips to help beginner runners and those returning after a break to stay on track.
We’re thrilled to announce that Alan Davies, Elliot Steel, John Moloney, Ian Stone and Jess Robinson will be joining host Kevin Day for our 2025 Lily Comedy Night! As we eagerly anticipate this event, we reflected on last year’s milestone – the 15th Lily Comedy Night – with The Comedy Store Founder, Don Ward.
Discover The Lily Foundation’s Research Zone, your gateway to the latest breakthroughs, expert insights and cutting-edge developments in mitochondrial disease research. Step into a world where the fight against mitochondrial disease is happening every day.
Sign up for Lily Fight Night 2025 and train for the experience of a lifetime. Get fit, step into the ring and help fight mitochondrial disease.
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