Fighting mito,
finding hope.
Donate through JustGiving to help The Lily Foundation fight mitochondrial disease and find hope for patients and their families.
Our vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.
Together we’re navigating the complexities of mitochondrial disease; today raising awareness of mito across the globe; tomorrow unlocking the cure through pioneering research; forever supporting the mito community and empowering everyone to make a difference.
Mitochondrial disease, or ‘mito’, is a rare, complex and difficult-to-diagnose genetic disorder that affects people in very different ways. It can affect any organ at any age, and often occurs in babies and young children. There is currently no cure, but we’re working hard to change that, and are the largest charitable funder of mitochondrial research in Europe.
Mitochondrial dysfunction has been identified as a key factor in other more common diseases including dementia, Parkinson's disease, epilepsy and cancer. The research we fund and support not only holds promise for individuals with mitochondrial disorders, but has the potential to benefit millions of others too.
That’s why, despite being a little-known disease, mitochondrial disease could be the key to some of the most important medical breakthroughs of our time.
Raised
since 2007
Families
supported
Donated
to patients
Research projects
funded
Children and adults affected by mitochondrial disease often feel lost and isolated because so few people have heard of the disease. By making a donation this Christmas, you can help The Lily Foundation provide support to the patients and their families impacted by this little-known but devastating condition.
Since 2007, when our founder Liz tragically lost her baby daughter Lily to mitochondrial disease, The Lily Foundation has become a beacon of support within the mito community. Your Christmas charity donation will ensure that we continue to provide support to those who need it most.
When you donate to The Lily Foundation this Christmas, you’re helping to build a supportive community for people who can otherwise feel forgotten. Every donation, big or small, contributes to a future where mitochondrial disease patients like James have hope.
Because of you, no one has to face mito alone. Donate today to keep it that way.
Two years ago, The Lily Foundation proudly announced funding for a pioneering research project aimed at improving diagnostic rates for complex cases of mitochondrial disease. Today, the Precision Diagnostics project is moving at pace, with recruitment sites now opening across the UK.
Open now! Enter The Lily Foundation’s Christmas Raffle for the chance to win a luxurious two-night stay in Bath for up to eight guests. Every entry helps support families affected by mitochondrial disease, fund crucial research and raise awareness. Make a difference and win big this Christmas. But hurry – our raffle closes soon!
Sid and Kerry, parents of three from Yorkshire, are navigating a life with the challenges of their son Bill’s mitochondrial disease. Through their dedication to fundraising and involvement of the local community, they’ve found both hope and a strong support network to help them deal with the disease.
If you have any problems please email [email protected]
