Putting mito on the map

Hi Lily supporter,

Did you know it’s World Mitochondrial Disease Week from 16th-22nd September? This year we’re making it our mission to put mitochondrial disease on the map all over the UK.

We want to get everyone talking about mito. Because getting it in the public eye helps drive research, boost donations and improve clinical services.

But we can’t do this without you. As awareness week approaches, keep reading to find loads of fun and easy ways to get involved.

Get a Twibbon

We’ve created some World Mitochondrial Disease Week Twibbons which you can add to your social media profile pictures. This is one of the simplest ways to tell people about mitochondrial disease and show your support.

Take a Stand

Setting up a Lily Foundation awareness stand is a great way to spread the word about mito in your community. Any location with plenty of passing traffic is ideal, such as your local school, supermarket, sports or health centre.

A lady in a Lily top standing next to a table with bunting, balloons and leaflets

Gateshead Millennium Bridge lit up in the darkness over the river

Light Up for Mito

Every year, landmarks around the world are lit up green to raise awareness about mito. This year, Light Up for Mito is on Saturday 21st September. Are there any significant buildings in your area that you could ask to take part?

Help put mito on the map

Are you affected by mito?

A lady holding a newspaper open in front of her and reading it

Your story is important – make sure it gets heard. If you’ve been affected by mitochondrial disease, we’re asking you to share your journey with local press organisations, radio and TV stations and put mito on the map in your area.

Share your story

Kevin’s football fundraiser

Comedian and long-time Lily supporter Kevin Day is marching over 60 miles this September from Tottenham Hotspur to Crystal Palace to raise funds for us and help put mito on the map.

Sponsor Kevin Day

Comedian Kevin Day in a black coat with a pink background behind