Spreading the word about mito far and wide

Hello Supporter

Did you know that around one person in every 4,300 will develop some form of mitochondrial disease? Despite that, it’s still a relatively unknown condition, even amongst healthcare professionals.

That’s why we’ll keep spreading the word about it to raise awareness, improve clinical care and boost donations - that’s the best way to help those affected.

This month we’ve been busy telling people all over the country about mito, and we’ll keep on doing this until there’s an effective treatment and a clear pathway for every patient diagnosed.

Four people standing in front of a large screen that says Pint of Science

From the lab to the pub – bringing mito to the masses

Fancy a pint? Of science, that is! As part of the annual Pint of Science Festival, Lily’s Research Manager Maria headed to Darlington to talk about the unique challenges faced by mitochondrial disease patients, and how our charity are helping to address these issues.

Pull me a pint!

A group of people smiling standing in front of a large TV screen on the wall

Supporting those who care for mito patients

A recent Clinical Study Day in Oxford gave the Lily team the opportunity to talk to an audience of healthcare professionals about all the ways we’re there to support the patients and families affected by mitochondrial disease.

Find out more

Close-up of a golf club next to a golf ball on a tee on the green

Lily Golf Day 2024

Tickets are selling fast for our new-look Golf Day on 6th September at Croham Hurst Golf Club, Surrey.

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Are you affected by mito?

If you’ve received a mitochondrial disease diagnosis, The Lily Foundation can offer emotional support and practical advice as you navigate your illness.