Taking on new challenges at the Lily Young Adult Weekend

Newcastle Patient Information Day is back!

With the last PID in Newcastle having taken place back in 2019, it was clear by the attendance this year that everyone was delighted to have this social engagement back on the calendar – including us, as it offers us a great chance to raise awareness about our support services.

Breaking the silence about the lives that could have been

Losing a baby is one of the hardest things any parent will ever go through. To mark the occasion of Baby Loss Awareness Week earlier this month, we spoke with Beth about losing her baby son to mito and how she still carries her grief with her over 13 years later.

Something EPIC has arrived...

Research is the key to finding treatments and an eventual cure for mitochondrial disease, and we believe the real experts are the people living with the disease – the fighters, the mito heroes. Find out how we’re giving power to the patient with the launch of an exciting new Lily project.