Full newsletter archive

Help us spread the word ahead of this very important week

As we’re sure you already know, World Mitochondrial Disease Week is taking place from Monday 18th to Sunday 24th September. This year The Lily Foundation have got loads of fun and exciting things planned to help raise awareness of mito, and we’d like your help in the run-up to this significant week to get mito in the spotlight and spread the word to all those people who have never heard of it.

Thank you for making a difference.

Liz and the Lily team x

Take a Stand

We're aiming to have Lily awareness stands all over the UK in time for this special week, so if you, a family member or friend would like to request one of our Take a Stand packs, it comes with everything you need to raise awareness about mito in your community, including leaflets, bunting, balloons, a fundraising pack, collection box and Lily t-shirt.

Share a Bear

We’d love to get out all over the country spreading the word about mito, but there aren’t quite enough of us at Lily HQ for that! So we’ve enlisted the help of some adventurous little bears who are undertaking a very special journey, but they need a bit of assistance from you...

Share Mito Facts

We’ve put together some hard-hitting facts about mito to be shared on social media. Feel free to add your own personal message in your post, but don't forget to include the #MitoAware hashtag. We’ll be sharing a new fact each day during World Mitochondrial Disease Week, or you can download them from our website and share them yourself.

Light Up for Mito

On Saturday 23rd September, lots of buildings and monuments all around the world will be lighting up green to raise awareness about mitochondrial disease. Why not approach one of your local landmarks or buildings and ask them to get involved too?

You can manage the way we communicate with you and the type of emails you receive. If you no longer wish to receive emails from The Lily Foundation then please unsubscribe using the link below.