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Celebrating 15 years of... Lily friendship

Receiving a diagnosis for mitochondrial disease can be not only a frightening and upsetting time, but it can also be very lonely. Because mito is so rare, sometimes friends and family just don't understand, and that’s why The Lily Foundation have been bringing mito patients together for the last 15 years. From fundraisers to fun-packed family weekends, from Facebook groups and virtual social gatherings to emotional and practical support, we make sure there's always someone to turn to. Because no one should face mito alone.

15th anniversary Lily Ball raises over £76,000

Our charity ball is the biggest and usually the most glamorous event in our annual calendar, and this year was no exception. A silent auction, fun-format fortune cookie raffle and frenetic grand auction all helped to raise an incredible £76,000 on the night, and all that money will go towards providing counselling and therapy services for patients and their families who are affected by mito.

No one's voice should go unheard

We were delighted to welcome some of our young adult mito patients to our charity ball, and one of those was Bal. Bal's voice is rapidly deteriorating, and one day soon she'll no longer be able to speak, no longer be able to talk to her family or chat with her friends. However, a casual question asked at the Lily virtual coffee morning led to the charity funding a communication aid that would change her life. Find out how, thanks to the foundation and the friends she's made, Bal's illness won't now silence her.

“I’m just trying to keep everybody happy – myself included”

Another guest at our ball was mito mum Kerrie – mother, wife, carer, business owner, fundraiser and general all-round inspiration! Kerrie's been a friend to The Lily Foundation for many years now, so to mark International Women's Day earlier this month, we shone a light on her achievements to find out how she balances running a successful business with navigating her way through her daughter's incurable disease.

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