Full newsletter archive

How we're there for families affected by mito

As we continue to celebrate 15 years of The Lily Foundation, we’re highlighting all the positive things we’ve achieved together since 2007. As well as raising awareness of mito, and funding vital research to advance treatments, we also provide essential, ongoing support to patients and their families. But we couldn’t do this without your help – here are just some of the amazing things your donations continue to contribute to.

Making wishes come true

There are lots of ways to help make the lives of affected families easier and more enjoyable, but they can come at a price. And that’s why we’re delighted to launch our new Lily Wish Fund, a grant scheme designed to give mito sufferers and their families access to something they might not normally be able to afford, to help improve their lives.

The one place we can be ourselves

We know our families love the chance to get together with other parents and children at our popular annual Lily Family Weekend, forming new friendships and expanding their knowledge of mito. But now we can prove it! How? Our clever research team have pulled together a poster showcasing the weekend's impact, and the results are pretty conclusive…

A way to ease the loneliness

In the run-up to Rare Disease Day, we asked mito patient Amy to tell us what it’s like to live with the disease. One of the worst feelings she experienced was the isolation – the lack of knowledge and emotional support out there. Until she discovered The Lily Foundation. Find out how we’ve helped Amy as she navigates her mito journey.

You can manage the way we communicate with you and the type of emails you receive. If you no longer wish to receive emails from The Lily Foundation then please unsubscribe using the link below.