Our commitment to finding treatments and a cure

Spreading the word on the Foundation’s work

Alison Maguire (Head of Research and Finance) and Katie Waller (Science and Patient Engagement Officer) were delighted to attend the British Paediatric Neurology Association’s 49th Annual Scientific Meeting at The Royal College of Physicians of Edinburgh from the 25th-27th January 2023.

On the road with the research team

The Lily research team were flat out as last year came to a close, and with the busy festive season that followed, this is the first chance we’ve had to share with you what they got up to.

Paving the way in rare disease research

The loss of her baby cousin to mitochondrial disease at only 3 months old inspired Natasha to dedicate her medical research to this terrible condition that she and her family knew so little about.